Hey all!
As promised, I'm here to tell you about my allergy test results. I was tested for a number of fish, shellfish, tree nuts, seeds, citrus fruits, beans, spices, and vegetables. I'm happy (and sad) to say that I didn't react to ANY of them! Which is good and bad. Good because I don't have to eliminate any more foods. On the bad side, I am still having reactions and we're not sure why. It could be slightly due to my seasonal allergies or some other hidden food allergy. I've noticed that I hurt after chips and salsa, but I'm not sure what I could be allergic to in them (I've been tested for corn, tomatoes, and onions already). So I'm just gonna stay away from that and see how I feel.
So as some of you know, this coming week is Food Allergy Awareness Week. Even less of you know that the week after is National Eosinophilic Awareness Week aka NAEW.
If you have read my introduction and Attack of the Peas post, then you'll know that I suffer from Eosinophilic Esophagitis. Now what the heck is that? It is an immune disorder similar to an allergy. When I eat foods I'm allergic to, eosinophils, a type of white blood cell, build up in my esophagus. They cause it to become inflamed which causes a lot of pain. Then it becomes too inflamed and I have a muscle spasm. But for other people with EE, this is the least of their problems. A lot of kids are allergic to almost every food and some kids have such severe dysphagia, which means their esophagus is so rigid and tight, that they can't even swallow anything. Many kids with EE survive on purely a feeding tube. This disease is so new that doctors don't understand it yet. They don't know what causes it, why only some people get it, or how to fix it. There is no cure or even a treatment. Most kids like me are on an inhaled corticosteriod for ASTHMA that they have to somehow "swallow." It's incredibly stressful and upsetting. So during NEAW I'm going to be spreading awareness and I hope you will too. I'm going to be updating what I'm doing and sharing some stories of other people with EE. I hope you will all better understand EE and be more sympatheic for children with disorders such as ours.
Has anyone heard of or tried NAET (an allergy elimination technique)? My coworker has a number of food allergies and has participated in NAET and is pretty much cured. I am wondering if anyone else has tried it or even if it would work in people with EE. I'd love to have your feedback on this or any other technique! Because I can't imagine living my whole life in pain every day while still having to avoid all these delicious foods.
Last but not least, I made an alternative to Recess peanut butter cups! I was at Hobby Lobby and stumbled upon the best cooking aisle ever! I found peanut butter cup candy molds and was ecstatic! They're easy and super delicious.
I tried two different versions. One was with almond butter and the other was with sunflower seed butter. I've gotta admit that the sunflower seed butter was better but they were both delicious.
Butter cups: Dairy, eggs, soy, peanuts, fish, and gluten/wheat free.
It can be tree nut free too depending on the filling used.
Ingredients:
- Enjoy Life semi-sweet chocolate chips (or the rice milk chocolate bars) - about a cup depending on how many you want to make
- Almond Butter - about 1/3 cupOR
- Sunbutter or other sunflower seed butter - about 1/3 cupOR
- another "butter" of your choice - about 1/3 cup
Left: before filling. Right: after filling |
- Melt the chocolate chips in the microwave using a microwave safe bowl.
- Transfer some chocolate into the mold. I used a brush/glazer and a spoon. Coat the bottom of the mold about 1/4 cm thick. Make sure to get the sides too.
- Freeze for 3-5 minutes to allow the chocolate to harden. If the sides are too thin still, they will fall apart when you're removing the chocolates. So coat the sides again and freeze them again.
- Spoon a small amount of the "butter" into the center of the molds. Make sure you leave enough room for the chocolate topping, about 3 mm from the top.
- Transfer melted chocolate to fill the cups to the top.
- Freeze for about 15 minutes.
- Remove from molds and eat!
What I thought: These were super delicious! Like I said before, I like the sunflower seed butter ones better but these were a great alternative to Recess. These were super easy, but somewhat messy. But super tasty!
Enjoy!
-Michelle
3 comments:
Michelle,
We did a treatment similar to NAET with our 4 year old. It's called Bioset BAX 3000. It did not wipe out her sensitivities altogether, but it did make them less severe.
If you're interested, I would highly encourage you to look into natural/alternative medicine for some answers to the health issues you're struggling with. I have an excellent natural doctor in Denver, and would also point you to the GAPS diet. You will find tons of info if you Google it, but one place is http://gaps.me. A lot of what you're talking about is not treated successfully by the medical community because they tend to treat symptoms with drugs. Alternative medicine looks to treat the root problem with nutrition, supplements, lifestyle changes, even things as simple as changing how much fat/protein/carbs you eat at each meal. I have a friend in school for nutrition, and she isn't being taught the answers to these things either, and is very frustrated. Natural medicine has had these answers for a long time, but they don't make money for anyone, so they aren't marketed like cancer research, or the latest drug, if that makes sense.
Anyway, I'm rambling now. :) Let me know if you'd ever like to chat about this stuff! I'm self-taught, but it's been a passion of mine for many years, and health is a favorite subject!
Thank you for your input Sara!
I'll look into Bioset BAX 3000. Even if it doesn't wipe them out completely, I'd be happy with minimizing them. Every day is a struggle with constant pain WHILE being on medications minimizing my symptoms.
Yes, they don't know enough about my disease to cure it or even treat it. I'd rather stay away from these medications and find some other way of dealing with it. Thank you, I'll also look into the GAPS diet as well.
Thank you so much for all of your input! I'll definitely look into all of this stuff!
It might be easy to assume that you have chronic GERD or acid reflux, but it might also be just a symptom of something else. That “something else” could be EoE – or eosinophilic esophagitis. Some of the symptoms (apart from GERD and acid reflux) include difficulty swallowing, chest pains, persistent heartburns, backflow of food that you weren’t able to digest. If these are all too familiar, check with your physician to see of you indeed have EoE!
click here for more details
Post a Comment